Living With Long COVID

The U.S. Department of Health and Human Services, Administration for Community Living’s programs may be able to help you find services and support for people with disabilities, including those who may not identify as having a disability but struggle with daily tasks. To learn more, visit How ACL's Disability and Aging Networks Can Help People with Long COVID (PDF).

Do you need help applying for disability benefits? HCPH Connectors are available: HCPH Connect: Resource Navigation.

The following is not medical advice. Always consult with a health care provider before managing symptoms at home.

Research studies you can take part in:

RECOVER Initiative: The National Institutes of Health (NIH) has launched a nationwide research initiative on long COVID and is inviting long-COVID sufferers to participate in studies. Visit to learn more.

Resources for employees and employers

Resources for caregivers, schools, and more

Children and teens with post-COVID conditions can experience challenges with concentration, memory, mental health, and/or physical activity. Accommodations may be needed to help them attend school, complete schoolwork, or perform usual activities.

School administrators, counselors, and nurses can work with families and health care professionals to provide extra time for tests, scheduled rest periods throughout the day, a modified class schedule, or similar accommodations. Arrangements should also be considered for activities outside of school, such as sports, clubs, scouting, etc.


Long COVID advocacy and support groups

Online support groups:

  • Body Politic COVID-19 Support Group - A support group for people who are experiencing long COVID. Members can chat online with people who also have long COVID and support each other.
  • COVID-19 Recovery Collective - An online space for people to share their COVID-19 recovery story.
  • Long COVID Kids - Support, education, and advocacy opportunities for parents and caregivers of children with long COVID.
  • Patient-Lead Research Collaborative - A self-organized group of people with long COVID working on long COVID research based around their personal experience. The group has developed surveys for people who have long COVID to help learn more about the condition.
  • Survivor Corps - An online group that offers connection, support, and education for those affected by COVID-19.
  • Long COVID Alliance - A network of patient-advocates, scientists, disease experts, and drug developers who have joined together to leverage their collective knowledge and resources to educate policy makers and accelerate research to transform our understanding of post-viral illness.
  • Voices of Long COVID - The Voices of Long COVID campaign features testimonials from a diverse group of people ages 18-29 who are suffering from long-term complications of COVID-19 infection.